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21. Kidney Health Australia

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Provides awareness and early detection of kidney disease. We connect kidney patients to vital resources and services to help them manage their condition and achieve a better quality of life. 
South Melbourne, VIC

Website
1800 454 363
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22. Leukodystrophy Australia

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A support group for people with Leukodystrophy and their families which aims to provide; emotional, practical, financial support, Information and advocacy, Professional liaison with local services, Information via social media. It also aims to… 
Blackburn, VIC

Website
1800 141 400
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23. Australian Multiple Birth Association - National Office

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Umbrella organisation for groups throughout Australia that support parents who are expecting or have multiple births (twins, triplets, quads, and quins). It also provides support for bereaved families and those with special needs. 

Website
1300 886 499
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24. Australian Multiple Birth Association (AMBA)

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Provides support, resources, education and information to multiple birth families. Including regular social interaction; home visits; phone contact; coffee mornings; playgroups; parents nights out; education programs example expectant parent… 

Website
1300 886 499
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25. Australian Pituitary Foundation (APF) - National Office

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Provides support and information about pituitary disorders. Activities include presentation of patient information seminars, dissemination of pituitary condition educational materials, raising awareness of pituitary patient issues, providing… 

Website
1300 331 807
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26. Bowel Group for Kids Inc (BGK)

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Provides information, education and support to families who have children born with a congenital bowel disorder such as Hirschsprung disease or anorectal malformations (imperforate anus). 

Website
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27. Australian Ectodermal Dysplasia Support Group

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Provides support and referral advice to people and families affected by Ectodermal Dysplasia (ED). Also provides advice and information to healthcare professionals to assist in the provision of quality care for this condition. Meetings are… 
Bridgeman Downs, QLD

Website
0417 346 863
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28. Burns Support Foundation Inc

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Provides support to burns survivors, their family and friends to help ease their return to a regular lifestyle. Also provides a newsletter and runs two family weekend camps each year. Should you feel that you need to speak with a counsellor… 

Website
0438 906 617
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29. Canteen Australia (NSW and ACT)

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Not-for-profit that provides free and tailored support to young people aged 12-25 who are impacted by cancer. Whether they are dealing with their own diagnosis, a close family member's cancer or the death of a loved one. 
Newtown, NSW

Website
1800 226 833
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30. Charcot Marie Tooth Association of Australia Inc (CMTAA)

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Provides support to families affected by CMT through a range of services including newsletters, seminars, advice for exercising affected limbs and up to date information on research into CMT. 
Concord Repatriation Hospital, NSW

Website
0458 630 631
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31. Children's Cancer Institute- Charity

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An independent medical research institute wholly dedicated to conducting research into causes and treatment of childhood cancer. Charity organisation. 
UNSW, NSW

Website
1800 685 686
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32. CICADA Australia Inc

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Provides support and advice for pre and post cochlear implantees and families. Also provides opportunities to meet others socially and share information. Monthly morning teas and weekend social BBQs and Guest Speaker 4 times per year. 
Gladesville, NSW

Website
Map Directions
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33. Cri Du Chat Support Group Ltd

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Provides information, support and social contact for families who have a member with Cri Du Chat Syndrome. Also holds annual meetings and facilitates a Facebook discussion group. 

Website
03 9728 3327
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34. Australian Donor Conception Network

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Provides support through the website to those contemplating the use of donor sperm/egg/embryo, to existing parents, to anyone conceived in this way and past/present donors. 

Website
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35. Fabry Australia Inc

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Fabry Australia is a not-for-profit community organisation formed by patients, relatives and friends of those with Fabry Disease. Is a source of information, support and assistance on issues related to Fabry Disease. Also acts on behalf of… 

Website
0412 462 732
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36. Fragile X Association of Australia Inc

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Provides services and support to people affected by Fragile X syndrome and its related conditions and to their families and carers, including a free FX counselling service (Zoom or phone). Hosts educational webinars. 
Brookvale, NSW

Website
1300 394 636
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37. Friedreich's Ataxia Research Association (FARA)

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Provides information sessions for patients, families and supporters in Australia as well as annual scientific symposium for all researchers interested in Friedreich Ataxia. Raises funds to research better treatment and a cure for Friedreich Ataxia. 

Website
0419 422 242
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38. Gam-Anon

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Gam-Anon is a fellowship of men and women who are husbands, wives, relatives or close friends who have been affected by the gambling problem. Contact Gam-Anon for list of meeting's venue and time information. 
Fairfield, NSW

Website
Map Directions
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39. Gaucher Association of Australia and New Zealand

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Promotes awareness of Gaucher Disease and provides support to families. 

0414 564 069
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40. Guillain-Barre Syndrome Association of NSW Inc

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Provides support and information for people affected by Guillain-Barre syndrome and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and arranges visits by former patients to those currently in acute care and rehabilitation hospitals. 

Website
0487 843 723