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41. Haemochromatosis Australia

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Provides support, advocacy and information for people affected by haemochromatosis and their families. 

Website
1300 019 028
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42. Heart Support Australia (HSA) Ltd Head Office

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National Peak Body and volunteer heart patient support organisation with a network of branches around Australia. Provides socialisation, information and support to heart patients and their families. 
Phillip, ACT

Website
02 6253 0097
Map Directions
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43. Hydrocephalus Support Association Inc

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Support group for people affected by hydrocephalus. Support includes quarterly meetings and newsletter, resource materials, national conference every three years, Facebook support group for those affected by hydrocephalus, phone support… 
Hurstville, NSW

Website
02 9586 1057
Map Directions
4

44. IFFA (Interuption for Fetal Abnormality) Support Group

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Provides support and information to parents who have undergone an interruption of pregnancy for foetal abnormality. Services include parent contacts, support group meetings, newsletter and library. Group meets 1st Wed of each month, contact… 

02 4967 7413
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45. Laryngectomee Association of Victoria Inc

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Provides information and support to laryngectomees and those with similar vocal conditions. Social Gatherings via 'zoom' fortnightly on Thursday at 2pm. 
South Yarra, VIC

Website
03 9808 9264 (secret
Map Directions
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46. Australasian Lymphology Association

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Provides information and support to people with lymphoedema including publication of quarterly newsletter, printed materials and seminars. Able to provide details of branches throughout Victoria and details of therapists who specialise in… 

Website
1300 935 332
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47. Motor Neurone Disease Australia Inc (MNDA)

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This umbrella organisation for state Motor Neurone Disease associations encourages flow of information internationally and within Australia. It influences policy, provides information, raises awareness, and promotes and funds MND research. 
Deakin, ACT

Website
02 8287 4980
Map Directions
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48. Muscular Dystrophy Association

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Provides support, information and assistance for people with neuromuscular disorders Nationally. Services include NDIS co-ordination of supports, local connections, virtual and in-person activities and educational activities. Two wheelchair… 
North Melbourne, VIC

Website
03 9320 9555
Map Directions
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49. Nar Anon Family Groups [Australia] Inc

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Facilitates self-help support groups for families and friends of compulsive drug users. Members meet anonymously to gain an understanding of the user's behaviour and how to cope with it. Can provide details of group meetings held throughout… 
Balgowlah Heights, NSW

Website
02 8004 1214 (leave
Map Directions
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50. Children's Tumour Foundation

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The CTF is the only national support organisation for people impacted by all of types of Neurofibromatosis and Schwannomatosis. The CTF provides a national NF Helpline, clinical nurse specialists in two major children’s hospitals, NF camps 
Concord, New South Wales

Website
02 9713 6111
Map Directions
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51. Cancer Australia

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Aims to reduce the impact of cancer by translating worldwide research into evidence based information-improving health service delivery, strengthening national data capacity informing people with cancer about their diagnosis and treatment… 
Surry Hills, NSW

Website
02 9357 9400, 1800 6
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52. Osteogenesis Imperfecta Society of Australia

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Provides information and support including newsletter and biennial conference, to families affected by this condition. Can also provide contact details of local support groups. Email enquiries through the website. 

Website
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53. PKU (Phenylketonuria) Association of NSW Inc

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Provides support and information about PKU or Phenylketonuri. The Association is based in and around Sydney, NSW Australia but our members are in all states of Australia. 

Website
0418 234 922, 0414 2
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54. Perinatal Anxiety and Depression Australia (PANDA)

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Provides Australia wide helpline support, information and referral to women and their families affected by perinatal anxiety and depression. Assistance in setting up support groups. Information, education and training seminars for health… 
North Fitzroy, VIC

Website
03 9926 9090 (Admin)
Map Directions
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55. Psoriasis Australia Inc

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Provides information and support for psoriasis sufferers, their families and the general public. Holds bi monthly public meetings and publishes a quarterly e-newsletter. 
Carlton, VIC

Website
0481 346 160
Map Directions
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56. Raynaud's Association

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Provides information and support for those affected by Raynaud's Phenomenon. International organisation based in the United States. 

Website
800 280 8055
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57. Retina Australia Inc

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Provides support and information for persons diagnosed with Retinitis Pigmentosa, Usher Syndrome, Stargardt Disease age-related macular degeneration and other degenerative retinal diseases and their families, friends and health… 
Melbourne, VIC

Website
1800 999 870, 03 965
Map Directions
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58. Rett Syndrome Association of Australia Inc (RSAA)

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Provides information and support for people with Rett syndrome and their families and carers in Australia. Contact can be made by phone, email. 

Website
0418 561 796
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59. Miscarriage, Stillbirth and Newborn Death Support (SANDS)

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Volunteer-based organisation providing individualised care from one bereaved parent to another, giving them support and hope for the future, following the death of a baby. 
Surrey Hills, VIC

Website
1300 308 307 (24 hou
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60. Turner Syndrome Association of Australia Ltd

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Provides support and information to people with Turner syndrome and their families. 

Website
07 3298 6635