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81. Von Hippel-Lindau Family Alliance Australia (VHL Alliance)

1
Provides information for families and physicians about Von Hippel-Lindau disease, and runs local self-help support groups. Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected. 

Website
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82. SOFT Australia

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Parent support group for those affected by a rare Trisomy (duplication) disorder including full, partial, mosaic and ring, regardless of chromosome number. Provides information and emotional support and has representatives in most states. 

Website
0407 820 560
3

83. Dietitians Australia

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The professional body for nutrition and dietetic professionals, representing over 9000 members and is Australia's largest advocate for food and nutrition issues. 
Phillip, Australian Capital Territory

Website
02 6189 1200
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4

84. Australian Physiotherapy Association - National Office

4
National professional association with more than 29,000 members. 
Camberwell, VIC

Website
03 9092 0888
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5

85. DES Action Australia Inc

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Provides information, support to families affected by DES (stilboestrol) and other oestrogens prescribed from 1938 onwards - known side effects of treatment include: infertility, reproductive problems, autoimmune disease and cancer. 

Website
0410 864 636
6

86. Australian Council of Natural Family Planning (ACNFP) Inc

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Peak body for a group of organisations providing personal instruction in the use of natural family planning methods for avoiding or achieving pregnancy. Can provide details of contact telephone numbers throughout Australia. 

Website
0439 882 053
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87. SANE

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SANE offers a range of free digital and telehealth support services for people over 18 years of age with complex mental health needs, and their family, friends and carers. We also provide mental health support to people with intellectual disability 
South Melbourne, VIC

Website
1800 187 263
Map Directions
8

88. Cardiomyopathy Association of Australia Ltd

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Provides information and support and promotes public awareness of Cardiomyopathy. 

Website
1300 552 622 (Inform
9

89. Australian Action on Pre-Eclampsia Inc (AAPEC)

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Provides support for people affected by pre-eclampsia, HELLP Syndrome and eclampsia. 

Website
10

90. Meningitis Centre Australia Inc

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Provides support to meningitis sufferers and their families and produces educational material for parents, community members and health professionals. 
Nedlands, WA

Website
1800 250 223
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11

91. Australian Institute of Health and Welfare (AIHW)

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National agency set up by the Australian Government under the Australian Institute of Health and Welfare Act to provide reliable, regular and relevant information and statistics on Australia's health and welfare. The aim is to improve the… 
Bruce, ACT

Website
02 6244 1000
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12

92. Immune Deficiencies Foundation Australia (IDFA)

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To educate and raise awareness of immune deficiencies - both primary (genetic) and secondary (from transplantation, disease, chemotherapy or other treatments), within the general and medical communities. To provide education and emotional… 

Website
1800 100 198
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93. The Shepherd Centre - Telehealth all over Australia

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Not-for-profit providing specialised programs for children with hearing loss and their families. 
Newtown, NSW

Website
1800 020 030
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14

94. Deafness Forum of Australia

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Deafness Forum is the peak national body representing the interests of Australians who are deaf, have a hearing loss, an ear or balance disorder, and their families. 
Braddon, ACT

Website
Map Directions
15

95. Inclusion Australia

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National representative organisation for people with an intellectual disability and families. Works with state and territory members to lead national systemic advocacy on issues impacting people with an intellectual disability and families. 
Australind, WA

Website
1300 312 343
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16

96. Family Drug Support (FDS)

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Offers information and support for parents, family members and close friends of people using alcohol or other drugs 

Website
1300 368 186 (24 hou
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97. Spinal Cord Injuries Australia (SCIA) - Central Office

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Spinal Cord Injuries Australia (SCIA) has supported people with spinal cord injury (SCI) and other physical and neurological disabilities for over 50 years. 
Little Bay, NSW

Website
1800 819 775
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18

98. Brain Injury Australia

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Brain Injury Australia is the central clearinghouse of information and gateway to nationwide referral for optimising the social and economic participation of all Australians living with brain injury. Brain Injury Australia Limited represents… 
Putney, NSW

Website
1800 272 461, 02 980
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19

99. Kincare Community Services ACT

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In home support for seniors, carers and people with disabilities. Services include personal care, nursing care, respite care, allied health and domestic assistance. Overnight and 24hrs as required. 
Barton, ACT

Website
1300 733 510
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20

100. Australian Tinnitus Association (NSW) LTD

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The organisation provides support, information, resources and phone counselling to people with tinnitus and the associated symptoms of tinnitus so that the tinnitus community can better cope with tinnitus. 
Mascot, NSW

Website
02 8339 1899
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