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101. Cerebellar Ataxia Australia Inc.

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Provides support and information for people with cerebellar ataxia, their families and carers. Information available on research opportunities when they become available. 

Website
0428 589 717; 0402 2
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102. Cardiomyopathy Association of Australia Ltd

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Provides information and support and promotes public awareness of Cardiomyopathy. 

Website
1300 552 622 (Inform
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103. Australian Action on Pre-Eclampsia Inc (AAPEC)

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Provides support for people affected by pre-eclampsia, HELLP Syndrome and eclampsia. 

Website
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104. Meningitis Centre Australia Inc

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Provides support to meningitis sufferers and their families and produces educational material for parents, community members and health professionals. 
Nedlands, WA

Website
1800 250 223
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105. Stickler Syndrome Australia

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Provides support to families affected by Stickler syndrome. Facebook is a closed group - acceptance needed to join group. 
Kallangur, QLD

Website
07 3886 0665
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6

106. Immune Deficiencies Foundation Australia (IDFA)

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To educate and raise awareness of immune deficiencies - both primary (genetic) and secondary (from transplantation, disease, chemotherapy or other treatments), within the general and medical communities. To provide education and emotional… 

Website
1800 100 198
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107. The Shepherd Centre - Telehealth all over Australia

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Not-for-profit providing specialised programs for children with hearing loss and their families. 
Newtown, NSW

Website
1800 020 030
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8

108. Standards Australia

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Not-for-profit organisation supported by all sectors of the Australian community. Issues standards of acceptability in relation to provision of services etc., including AS1428 on access design, which incorporates standards for general… 
Sydney, NSW

Website
1800 035 822, 02 923
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9

109. Deafness Forum of Australia

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Deafness Forum is the peak national body representing the interests of Australians who are deaf, have a hearing loss, an ear or balance disorder, and their families. 
Braddon, ACT

Website
Map Directions
10

110. Inclusion Australia

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National representative organisation for people with an intellectual disability and families. Works with state and territory members to lead national systemic advocacy on issues impacting people with an intellectual disability and families. 
Australind, WA

Website
1300 312 343
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11

111. Australian Red Cross - Social Inclusion Programs

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Social Inclusion Programs and Meals on Wheels. This service provides nutritious meals (fresh or frozen) all year round, as well as checking on how a person is going. Telecross provides a free, daily phone call by volunteers to people who… 
Garran, ACT

Website
02 6234 7663
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12

112. Spinal Cord Injuries Australia (SCIA) - Central Office

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Spinal Cord Injuries Australia (SCIA) has supported people with spinal cord injury (SCI) and other physical and neurological disabilities for over 50 years. 
Little Bay, NSW

Website
1800 819 775
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113. Brain Injury Australia

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Brain Injury Australia is the central clearinghouse of information and gateway to nationwide referral for optimising the social and economic participation of all Australians living with brain injury. Brain Injury Australia Limited represents… 
Putney, NSW

Website
1800 272 461, 02 980
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114. Australian Tinnitus Association (NSW) LTD

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The organisation provides support, information, resources and phone counselling to people with tinnitus and the associated symptoms of tinnitus so that the tinnitus community can better cope with tinnitus. 
Mascot, NSW

Website
02 8339 1899
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115. Sound Education

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Counselling and support for people with auditory processing, learning disabilities and difficulties. A specialty in sensory integration- particularly Tomatis Listening Training which uses modified music to directly influence the brain's… 
Torquay, QLD

Website
0425 242 123
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116. Australian Sign Language Interpreter Association

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National peak organisation for Auslan Interpreters in Australia. Represents the needs and interests of Auslan (Australian Sign Language) and Deaf (Relay) Interpreters in Australia. Provides a platform for the views of sign language… 

Website
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117. Mouth and Foot Painting Artists Pty Ltd (MFPA)

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An international organisation giving people with disability the opportunity to be financially independent while being creative. Managed by artists with disability. The majority of artists join as students providing their art is of a standard… 
Alexandria, NSW

Website
02 9698 3933
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118. Charcot Marie Tooth Association of Australia (CMTAA)

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Provides information and support to people with Charcot Marie Tooth disease and their carers. 

Website
0458 630 631
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119. The Children's Hospital at Westmead

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Public hospital dedicated to paediatric health services, it provides specialist care for children from around Australia and across the Pacific Rim as well as community education, advocacy for improved child health and ground-breaking… 
Westmead, NSW

Website
02 9845 0000 (Switch
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20

120. Glaucoma Australia Inc

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Telephone and personal support for people with glaucoma and their family / friends; educate the community about the risks of glaucoma; fundraise for Australian glaucoma research; bi-annual newsletter; provide public speakers. Occasional… 
Artarmon, NSW

Website
1800 500 880, 02 941
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