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1. Allergy and Anaphylaxis Australia

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Improved quality of life for all Australians living with allergic disease. The trusted charity for allergy support. Listen, guide and educate Australians living with allergic disease. We advocate on their behalf to ensure their voice is heard. 
Castle Hill, NSW

Website
1300 728 000
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2. Deaf Australia

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Deaf Australia is the national peak organisation for Deaf people in Australia. It is a not-for-profit and represents the views and needs of Deaf people who use Auslan (Australian Sign Language). It is a consumer organisation, only Deaf… 
Thornbury, VIC

Website
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3. Crohn's and Colitis Australia

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Provides education, understanding and confidential support to people with inflammatory bowel disease and their families. Services include telephone support service. Up to date information. Public meetings. Annual awareness week activities.… 
Hawthorn, VIC

Website
03 9815 1266
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4. Diabetes Australia - National Office

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Diabetes Australia is a national peak body for diabetes in Australia. Diabetes Australia works in partnership with health professionals, educators and researchers to minimise the impact of diabetes in the Australian community. Diabetes… 
Turner, ACT

Website
1300 136 588 (Infoli
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5. Haemophilia Foundation Australia Inc

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Provides support, information and representation for all people affected by haemophilia, von Willebrand disorder and related inherited bleeding disorders. Aims to improve care, treatment and quality of life through representation and… 
Malvern East, VIC

Website
1800 807 173
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6. Leukodystrophy Australia

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A support group for people with Leukodystrophy and their families which aims to provide; emotional, practical, financial support, Information and advocacy, Professional liaison with local services, Information via social media. It also aims to… 
Blackburn, VIC

Website
1800 141 400
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7. Continence Foundation of Australia Ltd (CFA)

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Continence Foundation of Australia provides information around bladder and bowel health. The continence foundation of Australia provides free information on funding, referral and products. Also provided resources for individuals, careers and… 
Surrey Hills, VIC

Website
03 8692 8400 (Office
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8. Fabry Australia Inc

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Fabry Australia is a not-for-profit community organisation formed by patients, relatives and friends of those with Fabry Disease. Is a source of information, support and assistance on issues related to Fabry Disease. Also acts on behalf of… 

Website
0412 462 732
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9. Haemochromatosis Australia

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Provides support, advocacy and information for people affected by haemochromatosis and their families. 

Website
1300 019 028
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10. Motor Neurone Disease Australia Inc (MNDA)

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This umbrella organisation for state Motor Neurone Disease associations encourages flow of information internationally and within Australia. It influences policy, provides information, raises awareness, and promotes and funds MND research. 
Deakin, ACT

Website
02 8287 4980
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11. Women with Disabilities Australia

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Peak representative organisation providing a national voice for the rights of women, girls, feminine identifying and non-binary people with disabilities. Provides systemic advocacy; policy advice; research; information and education with the… 
Lenah Valley, TAS

Website
0438 535 123
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12. National Disability Services

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NDS is the Peak Body for Disability Service Providers. Its purpose is to equip and enable its members to develop quality services and life opportunities for Australians with disability. 
Prospect, South Australia

Website
08 8154 3700
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13. Australian Thyroid Foundation (ATF)

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The ATF provides support and educational services for ATF members and their families. The ATF raises awareness throughout the Australian community about the benefits of Good Thyroid Health. Membership provides up to date research,… 

Website
0447 834 724
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14. Juvenile Diabetes Research Foundation (JDRF)

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Funds medical research into finding a cure for Type 1 diabetes and its complications. Also provides support to parents, family and friends of children newly diagnosed with Type 1 diabetes. 
St Leonards, NSW

Website
1300 363 126
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15. Consumers Health Forum of Australia Ltd

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The national peak body representing Australian healthcare consumers. Independent, member-based, non-government organisation for health consumers. Helps shape Australia?s health system by representing and involving consumers in health policy… 
Deakin, ACT

Website
02 6273 5444
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16. Sport Inclusion Australia

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Develops opportunities for people with intellectual impairment to become involved in sporting activities. Quarterly newsletter, resources, consultation with national organisations. 
Benalla, VIC

Website
03 5762 7494
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17. Australian Music Therapy Association (AMTA) Inc

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Association of university trained professionals in music therapy (i.e. evidence based use of music to address particular needs for a range of people, including those of people with disabilities). AMTA registers members, implements a… 

Website
03 9586 6033
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18. National Ethnic Disability Alliance (NEDA)

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The national disability peak organisation (DPO)representing the rights and interests of people from non-English speaking background (NESB) with disability, their families and carers throughout Australia. A community based, non-government… 
St Albans, VIC

Website
02 6262 6867; 0407 8
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19. Dementia Australia

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Peak body in Australia representing the interests of people with dementia, their families and carers. Also supports individual organisations providing services to people affected by dementia. 
Griffith, ACT

Website
1800 100 500
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20. Emerge Australia Inc

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National patient organisation providing education, advocacy, research and support services for people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID, their carers and healthcare providers. 
Melbourne, Victoria

Website
1800 865 321
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