Cure HHT
Description
This website is operated by the Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT Foundation International is a worldwide, non-profit organisation whose purpose is to support patients and families and educate medical professionals. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome. HHT is a genetic disorder, which affects blood vessels. This disorder is worldwide affecting males and females of all races and ethnic groups. Up to 1/3 of HHT patients can have multiple organ involvement, which can be disabling and/or life threatening. HHT can be treated successfully if correctly diagnosed.
Type
Online or Phone Service
Categories
Keywords
- Children and Families,
- Carers,
- People with a Disability,
- Hereditary Haemorrhagic Telangiectasia,
- Support Groups,
- Phone or Web Information Services,
- Children,
- Primary Children,
- Preschool Children,
- teenagers,
- Infants,
- Preschool Children (3-5),
- Infants (0-2),
- Children (0-18),
- Junior,
- Kids,
- Childhood,
- Preschoolers,
- Babies,
- Toddlers,
- infants(0-2),
- Preschool Children (2-5),
- Families,
- People with Disability,
- Disabled,
- People with Disabilities,
- Disability,
- handicapped,
- People with disability,
- Disability Support,
- Mutual Support,
- Peer Support,
- Self Help,
- Self Help Groups,
- Support Group,
- Telephone Information Services,
- Information Hotlines,
- Phone or Web Help Services
Alternative Names:
Previously known as Hereditary Hemorrhagic Telangiectasia (HHT) Foundation Inc
Areas Served:
National
Last review date:
14/6/23