Genetic Alliance Australia
Description
Genetic Alliance Australia provids peer support and information for individuals and families affected directly or indirectly by rare genetic conditions or rare disease. Genetic Alliance provides information and links to support groups, condition specific forums and an annual awareness event. GA-AU has a database of over 1350 predominantly rare genetic conditions/rare diseases.
Type
Online or Phone Service
Categories
Health and Wellbeing
>
Community Health Services , Health Support Groups , Counselling , Genetic and Pregnancy Counselling ,
Genetic Counselling
Info by Disability Type
>
Genetic Conditions , Angelman Syndrome, Cri du Chat Syndrome, Edwards syndrome (Trisomy 18 Full Form), Epidermolysis Bullosa (severe forms) ,
Autosomal Recessive Dystrophic Epidermolysis Bullosa,
Herlitz Junctional Epidermolysis Dystrophica,
Lysosomal Storage Disorders,
Mucopolysaccharidoses,
Patau syndrome,
Rett Syndrome,
Spinal Muscular Atrophies,
YR
, Leigh Syndrome , Intellectual Disability
Keywords
- People with a Disability,
- Physical Disability,
- Intellectual Disability,
- Leigh Disease,
- Support Groups,
- Health Information Services,
- Genetic Counselling,
- Aged and Disability Information Services,
- Children and Families,
- Newspapers and Printed Publications,
- Other Health Conditions(Rare Diseases),
- Registered Charity,
- Other Health Conditions(Genetic Conditions),
- Addisons Disease,
- Angelman Syndrome,
- Ankylosing Spondylitis,
- Apert Syndrome,
- Arnold Chiari Syndrome,
- Arthrogryposis,
- Aspergers Syndrome,
- Asthma,
- Batten Disease,
- Beckwith Wiedemann Syndrome,
- Charcot Marie Tooth Disease,
- Charge Syndrome,
- Cleft Palate and Lip,
- Congenital Adrenal Hyperplasia,
- Cri du Chat Syndrome,
- Crohns Disease,
- Crouzons Disease,
- Cushings Syndrome,
- Cystic Fibrosis,
- Ectodermal Dysplasia,
- Ehlers Danlos Syndrome,
- Epidermolysis Bullosa,
- Epilepsy,
- Fibromyalgia,
- Fragile X Syndrome,
- Friedreichs Ataxia,
- Galactosaemia,
- Lysosomal Storage Disorder,
- Guillain Barre Syndrome,
- Haemochromatosis,
- Hirschsprung Disease,
- Homocystinuria,
- Huntingtons Disease,
- Hydrocephalus,
- Hypothyroidism,
- Klippel Feil Syndrome,
- Lupus,
- Lymphoedema,
- Marfan Syndrome,
- Menieres Disease,
- Moebius Syndrome,
- Motor Neurone Disease,
- Mucopolysaccharide Disease,
- Muscular Dystrophy,
- Neurofibromatosis,
- Osteogenesis Imperfecta,
- Osteoporosis,
- Pagets Disease,
- Phenylketonuria,
- Pierre Robin Syndrome,
- Polycystic Kidney Disease,
- Raynauds Syndrome,
- Rett Syndrome,
- Russell Silver Syndrome,
- Sarcoidosis,
- Schizophrenia,
- Scleroderma,
- Shprintzen Syndrome,
- Shwachman Syndrome,
- Sjogrens Syndrome,
- Smith Magenis Syndrome,
- Spasmodic Dysphonia,
- Spina Bifida,
- Spinocerebellar Degeneration,
- Stickler Syndrome,
- Stuttering,
- Thalassaemia,
- Tourette Syndrome,
- Trisomy 13 Syndrome,
- Trisomy 18 Syndrome,
- Tuberous Sclerosis,
- Usher Syndrome,
- Velocardiofacial Syndrome,
- Von Hippel Lindau Syndrome,
- Von Willebrands Disease,
- Williams Syndrome,
- Wolf Hirschhorn Syndrome,
- Other Counselling(Tele-counselling),
- Other Training and Courses(outreach seminars),
- People with Disability,
- Disabled,
- People with Disabilities,
- Disability,
- handicapped,
- People with disability,
- Disability Support,
- Physical Disabilities,
- Intellectual Disabilities,
- Intellectually Disabled,
- Leigh Syndrome,
- Mutual Support,
- Peer Support,
- Self Help,
- Self Help Groups,
- Support Group,
- Children,
- teenagers,
- Infants,
- Infants (0-2),
- Children (0-18),
- Junior,
- Kids,
- Childhood,
- Babies,
- Toddlers,
- infants(0-2)
Alternative Names:
Formerly: Association of Genetic Support of Australasia (AGSA)
Transport:
Accessible by Bus or Train
Areas Served:
National
Last review date:
9/7/20 14:47
Level 6 384 Victoria St, Darlinghurst, NSW 2010