Provides information for families and physicians about Von Hippel-Lindau disease, and runs local self-help support groups. Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected.
Type
Online or Phone Service
Areas Served:
National
Last review date:
6/11/21 0:00
- People with a Disability
- Children and Families
- Support Groups
- Von Hippel Lindau Syndrome
- Phone or Web Information Services
- Health Information Services
- People with Disability
- Disabled
- People with Disabilities
- Disability
- handicapped
- People with Disability
- People with disability
- Disability Support
- Children
- Primary Children
- Preschool Children
- teenagers
- Infants
- Preschool Children (3-5)
- Infants (0-2)
- Children (0-18)
- Junior
- Kids
- Childhood
- Preschoolers
- Babies
- Toddlers
- infants(0-2)
- Preschool Children (2-5)
- Families
- Mutual Support
- Peer Support
- Support Groups
- Self Help
- Self Help Groups
- Support Group
- VHL
- Telephone Information Services
- Information Hotlines
- Phone or Web Help Services