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61. Tourette Syndrome Association of Australia

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Provides services and support to people with Tourette syndrome and their families. Services include telephone and email support, support groups, TSAA Facebook page, quarterly newsletters and access to publications and up to date resources on… 
Nedlands, WA

Website
02 9382 3726
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62. Tuberous Sclerosis Australia (TSA)

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Provides information and support to people with tuberous sclerosis complex (TSC) and their families. They also provide information to health professionals. The office is not open to the public. The TSC Nurse Service is a confidential service… 

Website
1300 733 435
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63. Australian Society of Teachers of the Alexander Technique (AUSTAT)

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Australian Society for teachers of the Alexander Technique which is aimed at teaching skills in self-management, particularly in relation to back care, stress and breathing and movement re-education. Can provide contact details of fully… 

Website
0407 261 927
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64. Australian Thyroid Foundation (ATF)

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The ATF provides support and educational services for ATF members and their families. The ATF raises awareness throughout the Australian community about the benefits of Good Thyroid Health. Membership provides up to date research,… 

Website
0447 834 724
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65. Brain Foundation - National Office

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A nationally registered charity dedicated to funding research Australia-wide into neurological disorders, brain disease and brain injuries. 
Crows Nest, NSW

Website
1300 886 660
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66. QENDO Inc

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Support for anyone affected by endometriosis, adenomyosis, PCOS, infertility or pelvic pain, by offering them the tools, services and programs to understand and take control of their health. 

Website
07 3321 4408 (local
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67. Juvenile Diabetes Research Foundation (JDRF)

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Funds medical research into finding a cure for Type 1 diabetes and its complications. Also provides support to parents, family and friends of children newly diagnosed with Type 1 diabetes. 
St Leonards, NSW

Website
1300 363 126
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8

68. Mucopolysaccharide (MPS) and Related Diseases Society Aust Ltd

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The Australian MPS Society provides: Educational Resources via the website; Membership Assistance Program - limited financial supports to help families manage the costs associated with MPS; Research and Advocacy. Also holds a biennial… 

Website
1800 045 515
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69. Narcolepsy and Overwhelming Daytime Sleep Society (NODSS) of Australia

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A volunteer service which provides support for people with Narcolepsy or Idiopathic Hypersomnia and any other sleep disorders, for their families and friends, doctors, health professionals and students. Also encourages and aids research.… 
Melbourne, VIC

Website
03 9761 9767
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10

70. Narcolepsy and Overwhelming Daytime Sleep Society (NODSS) of Australia

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A volunteer service which provides support for people with Narcolepsy or Idiopathic Hypersomnia and any other sleep disorders, for their families and friends, doctors, health professionals and students. Also encourages and aids research.… 

Website
03 9761 9767
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71. Short Statured People of Australia Inc (SSPA)

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The Short Statured People of Australia (SSPA) is a non-profit organisation that provides support and information for people with conditions of dwarfism, their families and other interested members of the community. 

Website
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72. The Australian Sjogren's Syndrome Association Inc (TASSA)

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Offers information and support to those affected by Sjogren's Syndrome, their families and carers and aims to promote public awareness of this condition. Support, information and helpful products can be accessed via the website provided. 

Website
02 6672 4463
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13

73. Trigeminal Neuralgia Support Group (WA) Inc

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Provides support and information to sufferers of Trigeminal Neuralgia and Facial Pain and their families. 
Swanbourne, WA

Website
0417 968 600
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74. 22q11 Foundation Australia and New Zealand

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The 22q Foundation Australia and New Zealand are here to offer practical information, access to research and connections to other families on a similar journey. 

Website
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75. Australian Addison’s Disease Association Inc

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National patient organisation that provides support for people living with Addison's disease and secondary adrenal insufficiency. Supplying up to date information and education to people living with adrenal insufficiency. 

Website
0455 534 472
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76. Cure HHT

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This website is operated by the Hereditary Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT Foundation International is a worldwide, non-profit organisation whose purpose is to support patients and families 

Website
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77. NextSense

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Provides a range of services to support children living with hearing loss and impaired vision. Services include Diagnosis, Cochlear Implant Services, Early Intervention - hearing, Paediatric Audiology, Speech Pathology, Occupational Therapy,… 
North Rocks, NSW

Website
1300 581 391
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78. ADDults with ADHD

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ADHD Connect Australia Ltd T/as ADDults with ADHD has provided free information, support and self-help resources to adults and families coping with ADHD for 30 years. 
Wahroonga, New South Wales

Website
Map Directions
19

79. Angelman Syndrome Association Australia (ASAA)

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Support group for families of children with Angelman Syndrome, linking families and providing pamphlets, medical journal material, information kits and videos. Angelman Syndrome is a neurological disorder featuring floppiness in the newborn… 

Website
02 9520 5857
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80. Caroline Hawes

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Provides peer support and information for families affected by the Beckwith-Wiedemann Syndrome. 

Website
61408563320