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81. Angelman Syndrome Association Australia (ASAA)

1
Support group for families of children with Angelman Syndrome, linking families and providing pamphlets, medical journal material, information kits and videos. Angelman Syndrome is a neurological disorder featuring floppiness in the newborn… 

Website
02 9520 5857
2

82. Sport Inclusion Australia

2
Develops opportunities for people with intellectual impairment to become involved in sporting activities. Quarterly newsletter, resources, consultation with national organisations. 
Benalla, VIC

Website
03 5762 7494
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3

83. Caroline Hawes

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Provides peer support and information for families affected by the Beckwith-Wiedemann Syndrome. 

Website
61408563320
4

84. Cerebral Palsy Australia

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Cerebral Palsy Australia is a national not-for-profit dedicated to advancing the rights and welfare of people with cerebral palsy. 
Sydney, NSW

Website
1800 771 663
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5

85. Genetic Alliance Australia

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Genetic Alliance Australia provids peer support and information for individuals and families affected directly or indirectly by rare genetic conditions or rare disease. 
Darlinghurst, NSW

Website
02 9295 8359
6

86. University of New South Wales - Centre for Social Research in Heath (CSRH)

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The Centre for Social Research in Health (CSRH), formerly the National Centre in HIV Social Research (NCHSR) is a national and international research facility specialising in the behavioural and social research of health. Established in 1990… 
Sydney, NSW

Website
02 9385 6776
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7

87. Rosnel Hostel Special Care Accommodation

7
Licensed private accommodation for 30 people with mild to moderate intellectual disabilities or mental illness. NDIS registered provider. 
Bundanoon, NSW

02 4883 6032
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8

88. Defence Special Needs Support Group

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National volunteer organisation providing support for Defence Services families who have a child, spouse or elderly dependent with special needs or a chronic illness. Provides a number of services and programs including respite care. The… 
Deakin West, ACT

Website
0435 933 289
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9

89. Quest for Life Foundation

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Educational programs for people living with depression, anxiety, trauma, chronic illness and post-traumatic stress disorder (PTSD). Residential Programs and Workshops assist people, communities and organisations who may be living with trauma, cancer 
Bundanoon, NSW

Website
1300 941 488
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10

90. Dementia Australia

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Peak body in Australia representing the interests of people with dementia, their families and carers. Also supports individual organisations providing services to people affected by dementia. 
Griffith, ACT

Website
1800 100 500
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11

91. Dementia Australia

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Dementia Australia supports people of all ages living with all forms of dementia, their families and carers. If you or a family member have concerns about changes to memory, thinking or behaviour, or you have dementia, we are here to support… 
Hawthorn, VIC

Website
03 9815 7800 (Office
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12

92. Synapse Australia Limited

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Provides a range of support services for people who have been impacted by brain injury and disability including Support Coordination, Advocacy, individual support and targeted research activities. 
West End, QLD

Website
1800 673 074
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13

93. Emerge Australia Inc

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National patient organisation providing education, advocacy, research and support services for people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID, their carers and healthcare providers. 
Melbourne, Victoria

Website
1800 865 321
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14

94. Craniofacial Australia

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Craniofacial Australia helps fund education and training programs for surgeons from all over the world, purchase medical equipment, fund research into the causes, treatment, and prevention of craniofacial deformities and injuries, and… 
North Adelaide, SA

Website
08 8267 4128
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15

95. Sleep Disorders Australia (SDA)

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Voluntary Not for Profit organisation that provides information and offers support and assistance to people and their families who are affected by sleep disorders throughout Australia. We also advocate for the needs of people affected by… 

Website
16

96. Von Hippel-Lindau Family Alliance Australia (VHL Alliance)

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Provides information for families and physicians about Von Hippel-Lindau disease, and runs local self-help support groups. Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected. 

Website
17

97. SOFT Australia

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Parent support group for those affected by a rare Trisomy (duplication) disorder including full, partial, mosaic and ring, regardless of chromosome number. Provides information and emotional support and has representatives in most states. 

Website
0407 820 560
18

98. Dietitians Australia

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The professional body for nutrition and dietetic professionals, representing over 8500 members and is Australia's largest advocate for food and nutrition issues. Dietitians Australia also provides information for the public regarding local services 
Phillip, Australian Capital Territory

Website
02 6189 1200
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19

99. DES Action Australia Inc

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Provides information, support to families affected by DES (stilboestrol) and other oestrogens prescribed from 1938 onwards - known side effects of treatment include: infertility, reproductive problems, autoimmune disease and cancer. 

Website
0410 864 636
20

100. Australian Pompe Association (APA)

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Support group for people affected by Pompe disease, their families and friends. 

Website
02 9629 2842