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81. Angelman Syndrome Association Australia (ASAA)

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Angelman Syndrome Association Australia (ASAA) is the key advocacy and peer support organisation for people living with Angelman syndrome and their families in Australia. 
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82. Sport Inclusion Australia

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Develops opportunities for people with intellectual impairment to become involved in sporting activities. Quarterly newsletter, resources, consultation with national organisations. 
Benalla, VIC

03 5762 7494
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83. Caroline Hawes

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Provides peer support and information for families affected by the Beckwith-Wiedemann Syndrome. 

61408563320
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84. Cerebral Palsy Australia

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Cerebral Palsy Australia is a national not-for-profit dedicated to advancing the rights and welfare of people with cerebral palsy. 
Sydney, NSW

1800 771 663
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85. Genetic Alliance Australia

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Genetic Alliance Australia provids peer support and information for individuals and families affected directly or indirectly by rare genetic conditions or rare disease. 
Darlinghurst, NSW

02 9295 8359
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86. University of New South Wales - Centre for Social Research in Heath (CSRH)

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The Centre for Social Research in Health (CSRH), formerly the National Centre in HIV Social Research (NCHSR) is a national and international research facility specialising in the behavioural and social research of health. Established in 1990… 
Sydney, NSW

02 9385 6776
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87. Rosnel Hostel Special Care Accommodation

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Licensed private accommodation for 30 people with mild to moderate intellectual disabilities or mental illness. NDIS registered provider. 
Bundanoon, NSW

02 4883 6032
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88. Defence Special Needs Support Group

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National volunteer organisation providing support for Defence Services families who have a child, spouse or elderly dependent with special needs or a chronic illness. Provides a number of services and programs including respite care. The… 
Deakin West, ACT

0435 933 289
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89. Quest for Life Foundation

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Educational programs for people living with depression, anxiety, trauma, chronic illness and post-traumatic stress disorder (PTSD). Residential Programs and Workshops assist people, communities and organisations who may be living with trauma, cancer 
Bundanoon, NSW

1300 941 488
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90. Dementia Australia

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Dementia Australia is the source of trusted information, education and services for the estimated 400,000 Australians living with dementia, and the more than 1.5 million people involved in their care. 
Griffith, ACT

1800 100 500
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91. Synapse Australia Limited

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Provides a range of support services for people who have been impacted by brain injury and disability including Support Coordination, Advocacy, individual support and targeted research activities. 
West End, QLD

1800 673 074
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92. Emerge Australia Inc

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National patient organisation providing education, advocacy, research and support services for people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID, their carers and healthcare providers. 
Melbourne, Victoria

1800 865 321
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93. Craniofacial Australia

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Craniofacial Australia supports people living with craniofacial conditions. Our mission is to work towards a better future with better treatment, outcomes and awareness. 
North Adelaide, SA
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94. Sleep Disorders Australia (SDA)

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Voluntary Not for Profit organisation that provides information and offers support and assistance to people and their families who are affected by sleep disorders throughout Australia. We also advocate for the needs of people affected by… 
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95. Von Hippel-Lindau Family Alliance Australia (VHL Alliance)

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Provides information for families and physicians about Von Hippel-Lindau disease, and runs local self-help support groups. Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected. 
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96. SOFT Australia

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Parent support group for those affected by a rare Trisomy (duplication) disorder including full, partial, mosaic and ring, regardless of chromosome number. Provides information and emotional support and has representatives in most states. 

0407 820 560
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97. Dietitians Australia

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The professional body for nutrition and dietetic professionals, representing over 9000 members and is Australia's largest advocate for food and nutrition issues. 
Phillip, Australian Capital Territory

02 6189 1200
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98. DES Action Australia Inc

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Provides information, support to families affected by DES (stilboestrol) and other oestrogens prescribed from 1938 onwards - known side effects of treatment include: infertility, reproductive problems, autoimmune disease and cancer. 

0410 864 636
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99. Australian Pompe Association

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Support group for people affected by Pompe disease, their families and friends. 

0418 966 509
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100. Cerebellar Ataxia Australia Inc.

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Provides support and information for people with cerebellar ataxia, their families and carers. Information available on research opportunities when they become available. 

0428 589 717; 0402 2